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Domain > btcredit.com
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More information on this domain is in
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DNS Resolutions
Date
IP Address
2019-09-29
174.140.165.134
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ClassC
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2026-01-15
43.134.117.145
(
ClassC
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Port 80
HTTP/1.1 200 OKServer: nginxDate: Thu, 15 Jan 2026 23:55:40 GMTContent-Type: text/html; charsetUTF-8Transfer-Encoding: chunkedConnection: keep-aliveVary: Accept-EncodingSet-Cookie: RAREHOPE_SESSIONamls7qd2th46l7vevdgb4abvb3; expiresFri, 16 Jan 2026 01:55:40 GMT; Max-Age7200; path/; HttpOnly; SameSiteLaxExpires: Thu, 19 Nov 1981 08:52:00 GMTCache-Control: no-store, no-cache, must-revalidatePragma: no-cache !DOCTYPE html>html langzh-CN data-themelight>head> meta charsetUTF-8> meta nameviewport contentwidthdevice-width, initial-scale1.0> meta http-equivX-UA-Compatible contentIEedge> meta namecsrf-token contentf73db7152a2153ac2fef78443b6e3f687c164c1890fdc56f5b72fb6ae4a690dd> title>Btcredit.com 罕见病关爱平台 - 关注罕见病，传递希望与爱/title> meta namedescription content罕见病公益平台，提供罕见病百科知识、最新资讯、患者故事分享和在线捐助服务，让每一个生命都被关爱。> meta namekeywords content罕见病,公益,慈善,医疗援助,患者故事,RareHope> !-- Open Graph --> meta propertyog:title contentBtcredit.com 罕见病关爱平台 - 关注罕见病，传递希望与爱> meta propertyog:description content罕见病公益平台，提供罕见病百科知识、最新资讯、患者故事分享和在线捐助服务，让每一个生命都被关爱。> meta propertyog:type contentwebsite> meta propertyog:url contenthttp://btcredit.com/> meta propertyog:image contenthttp://btcredit.com/assets/images/og-image.jpg> !-- Favicon --> link relicon typeimage/x-icon hrefhttp://btcredit.com/assets/images/favicon.ico> link relapple-touch-icon hrefhttp://btcredit.com/assets/images/apple-touch-icon.png> !-- Bootstrap 5 CSS --> link hrefhttps://cdn.jsdelivr.net/npm/bootstrap@5.3.2/dist/css/bootstrap.min.css relstylesheet> !-- Font Awesome 6 --> link hrefhttps://cdn.jsdelivr.net/npm/@fortawesome/fontawesome-free@6.5.1/css/all.min.css relstylesheet> !-- Custom Styles --> link hrefhttp://btcredit.com/assets/css/style.css?v1768521340 relstylesheet> !-- Preload theme --> script> (function() { const theme localStorage.getItem(rarehope_theme) || (window.matchMedia((prefers-color-scheme: dark)).matches ? dark : light); document.documentElement.setAttribute(data-theme, theme); })(); /script>/head>body> !-- Skip to main content (Accessibility) --> a href#main-content classvisually-hidden-focusable>跳转到主要内容/a> !-- Navigation --> nav classnavbar navbar-expand-lg> div classcontainer> !-- Brand --> a classnavbar-brand hrefhttp://btcredit.com/> i classfas fa-heart-pulse text-primary>/i> span>Btcredit/span> /a> !-- Mobile Toggle --> button classnavbar-toggler typebutton data-bs-togglecollapse data-bs-target#navbarMain aria-controlsnavbarMain aria-expandedfalse aria-labelToggle navigation> span classnavbar-toggler-icon>/span> /button> !-- Navigation Items --> div classcollapse navbar-collapse idnavbarMain> ul classnavbar-nav me-auto mb-2 mb-lg-0> li classnav-item> a classnav-link active hrefhttp://btcredit.com/> i classfas fa-home d-lg-none me-2>/i>首页 /a> /li> li classnav-item> a classnav-link hrefhttp://btcredit.com/diseases.php> i classfas fa-book-medical d-lg-none me-2>/i>罕见病百科 /a> /li> li classnav-item> a classnav-link hrefhttp://btcredit.com/news.php> i classfas fa-newspaper d-lg-none me-2>/i>新闻资讯 /a> /li> li classnav-item> a classnav-link hrefhttp://btcredit.com/stories.php> i classfas fa-users d-lg-none me-2>/i>患者故事 /a> /li> /ul> !-- Right Side Items --> div classd-flex align-items-center gap-2 ms-auto> !-- Search Form (Visible on desktop) --> form classnavbar-search d-none d-lg-flex me-2 actionhttp://btcredit.com/search.php methodGET rolesearch> div classinput-group input-group-sm> input typesearch classform-control nameq placeholder搜索... aria-label搜索 value> button classbtn btn-outline-secondary typesubmit> i classfas fa-search>/i> /button> /div> /form> !-- Patient Register Button --> a hrefhttp://btcredit.com/patient_register.php classbtn btn-donate btn-sm d-none d-md-inline-flex> i classfas fa-file-medical me-2>/i>患者登记 /a> !-- Donate Button --> a hrefhttp://btcredit.com/donate.php classbtn btn-donate btn-sm d-none d-md-inline-flex> i classfas fa-hand-holding-heart me-2>/i>我要捐助 /a> !-- Theme Toggle --> button classtheme-toggle typebutton aria-label切换深色模式 title切换深色模式> i classfas fa-moon>/i> i classfas fa-sun>/i> /button> !-- User Menu --> a hrefhttp://btcredit.com/login.php classbtn btn-outline-primary btn-sm> i classfas fa-sign-in-alt me-1>/i>登录 /a> a hrefhttp://btcredit.com/register.php classbtn btn-primary btn-sm d-none d-md-inline-block> 注册 /a> /div> !-- Mobile Items (Search and Mobile Toggle) --> div classd-flex d-lg-none align-items-center gap-2> button classbtn btn-link p-0 text-body typebutton data-bs-togglecollapse data-bs-target#mobileSearch> i classfas fa-search>/i> /button> button classnavbar-toggler p-0 border-0 typebutton data-bs-togglecollapse data-bs-target#navbarMain aria-controlsnavbarMain aria-expandedfalse aria-labelToggle navigation> span classnavbar-toggler-icon>/span> /button> /div> /div> /div> !-- Mobile Search Collapse --> div classcollapse d-lg-none idmobileSearch> div classcontainer py-2> form actionhttp://btcredit.com/search.php methodGET> div classinput-group> input typesearch classform-control nameq placeholder搜索... value> button classbtn btn-primary typesubmit>搜索/button> /div> /form> /div> /div> /nav> !-- Flash Messages --> !-- Main Content --> main idmain-content>!-- Hero Section -->section classhero> div classcontainer> div classrow align-items-center> div classcol-lg-7 hero-content> h1>关注罕见病br>传递希望与爱/h1> p classlead> 全球有超过3亿罕见病患者，他们需要我们的理解、支持与关爱。br> 我们致力于搭建一座桥梁，连接患者、家庭与社会。 /p> div classd-flex flex-wrap gap-3> a hrefhttp://btcredit.com/patient_register.php classbtn btn-donate btn-lg> i classfas fa-file-medical me-2>/i>患者登记 /a> a hrefhttp://btcredit.com/diseases.php classbtn btn-outline-light btn-lg> i classfas fa-book-medical me-2>/i>了解罕见病 /a> /div> /div> div classcol-lg-5 d-none d-lg-block text-center> img srchttp://btcredit.com/assets/images/hero-illustration.svg alt关爱罕见病 classimg-fluid stylemax-height: 400px; onerrorthis.style.displaynone> /div> /div> /div>/section>!-- Announcement Section -->section classpy-4 bg-light> div classcontainer> div classcard border-0 shadow-sm styleborder-left: 4px solid var(--primary) !important;> div classcard-body py-3> div classrow align-items-center> div classcol-auto> div classd-flex align-items-center justify-content-center stylewidth: 48px; height: 48px; background: linear-gradient(135deg, #5B8C5A 0%, #6C8EBF 100%); border-radius: 12px;> i classfas fa-bullhorn text-white fa-lg>/i> /div> /div> div classcol> div classd-flex align-items-center mb-1> span classbadge stylebackground: var(--primary); font-size: 0.75rem; padding: 0.35em 0.65em;> i classfas fa-volume-up me-1>/i>平台公告 /span> /div> p classmb-0 text-dark stylefont-size: 1.05rem; line-height: 1.6;> 本网站旨在提高公众对公共健康新闻的认识并分享实时资讯。br />我们关注罕见病的宣传，同时为了避免误导访客，我们声明本网站与任何公司或商标没有任何关联。 /p> /div> div classcol-auto d-none d-md-block> button classbtn btn-sm btn-outline-primary onclickthis.closest(.card).style.displaynone> i classfas fa-times>/i> /button> /div> /div> /div> /div> /div>/section>!-- Statistics Section -->section classstats-section> div classcontainer> div classrow> div classcol-6 col-lg-2 col-md-4> div classstat-item> div classstat-number data-countup89>0/div> div classstat-label>收录疾病/div> /div> /div> div classcol-6 col-lg-2 col-md-4> div classstat-item> div classstat-number data-countup150>0/div> div classstat-label>收录链接/div> /div> /div> div classcol-6 col-lg-3 col-md-4> div classstat-item> div classstat-number data-countup16021>0/div> div classstat-label>累计捐款(元)/div> /div> /div> div classcol-6 col-lg-2 col-md-6> div classstat-item> div classstat-number data-countup25>0/div> div classstat-label>爱心捐助/div> /div> /div> div classcol-6 col-lg-3 col-md-6> div classstat-item> div classstat-number data-countup106>0/div> div classstat-label>患者故事/div> /div> /div> /div> /div>/section>!-- Latest News Section -->section classsection> div classcontainer> div classsection-title> h2>i classfas fa-newspaper text-primary me-2>/i>新闻资讯/h2> p>了解罕见病领域的最新动态/p> /div> div classrow g-4> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-warning mb-2> 公告 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slugvolunteer-recruitment> 志愿者招募：与我们一起传递希望 /a> /h5> p classcard-text>平台启动2026年度志愿者招募计划，邀请热心公益的朋友加入我们。/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2026年01月02日/span> span>i classfas fa-eye>/i> 1.9K/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-warning mb-2> 公告 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?sluglaunch> 平台测试上线，开启罕见病公益新篇章 /a> /h5> p classcard-text>我们致力于为罕见病患者提供全方位支持。/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年12月06日/span> span>i classfas fa-eye>/i> 6K/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-info mb-2> 未分类 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slug%E7%BD%95%E8%A7%81%E7%97%85%E8%AF%8A%E7%96%97%E5%8D%8F%E4%BD%9C%E7%BD%91%E8%A6%86%E7%9B%96%E5%85%A8%E5%9B%BD%E6%89%80%E6%9C%89%E7%9C%81%E4%BB%BD-1> 罕见病诊疗协作网覆盖全国所有省份 - 1 /a> /h5> p classcard-text>国家罕见病诊疗协作网已覆盖全国所有省份，形成上下联动的诊疗服务网络。/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年12月03日/span> span>i classfas fa-eye>/i> 1.3K/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-info mb-2> 政策 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slug%E7%BD%95%E8%A7%81%E7%97%85%E7%A7%91%E6%99%AE%E5%AE%A3%E4%BC%A0%E5%91%A8%E6%AD%A3%E5%BC%8F%E5%90%AF%E5%8A%A8-26> 罕见病科普宣传周正式启动 - 26 /a> /h5> p classcard-text>为期一周的罕见病科普宣传周正式启动，通过多种渠道普及罕见病知识。/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年08月26日/span> span>i classfas fa-eye>/i> 2.1K/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-info mb-2> 未分类 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slug%E5%B9%B2%E7%BB%86%E8%83%9E%E6%B2%BB%E7%96%97%E7%BD%95%E8%A7%81%E7%97%85%E4%B8%B4%E5%BA%8A%E8%AF%95%E9%AA%8C%E7%BB%93%E6%9E%9C%E7%A7%AF%E6%9E%81-79> 干细胞治疗罕见病临床试验结果积极 - 79 /a> /h5> p classcard-text>干细胞治疗罕见病的多项临床试验结果显示积极，安全性良好。/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年01月24日/span> span>i classfas fa-eye>/i> 4.7K/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-info mb-2> 未分类 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slug2024%E5%B9%B4%E5%9B%BD%E9%99%85%E7%BD%95%E8%A7%81%E7%97%85%E6%97%A5%E4%B8%BB%E9%A2%98%E5%AE%A3%E4%BC%A0%E6%B4%BB%E5%8A%A8%E6%88%90%E5%8A%9F%E4%B8%BE%E5%8A%9E-82> 2024年国际罕见病日主题宣传活动成功举办 - 82 /a> /h5> p classcard-text>第十七届国际罕见病日主题活动在北京成功举办，社会各界共同关注罕见病群体。/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年01月02日/span> span>i classfas fa-eye>/i> 4K/span> /div> /div> /div> /div> /div> div classtext-center mt-4> a hrefhttp://btcredit.com/news.php classbtn btn-outline-primary> 更多资讯 i classfas fa-arrow-right ms-2>/i> /a> /div> /div>/section>!-- Dynamic Category Sections --> section classsection > div classcontainer> div classsection-title> h2>i classfas fa-tag text-primary me-2>/i>公共健康新闻/h2> p>关注 公共健康新闻 关注健康如有新的疫情会同步保持更新/p> /div> div classrow g-4> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-danger mb-2> 公共健康新闻 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slug33> 纽约市军团病疫情致4人死亡 /a> /h5> p classcard-text>当地军团病疫情已导致4名患者死亡/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年08月15日/span> span>i classfas fa-eye>/i> 314/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-danger mb-2> 公共健康新闻 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slugjikong> 有疫情发生风险！河南被归类为防控Ⅱ类地区，重要提醒 /a> /h5> p classcard-text>河南省，被归类为基孔肯雅热防控的Ⅱ类地区/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年08月11日/span> span>i classfas fa-eye>/i> 285/span> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge bg-danger mb-2> 公共健康新闻 /span> h5 classcard-title> a hrefhttp://btcredit.com/news_detail.php?slugerzhi> 疫情已得到初步遏制 广东7天新增报告1387例基孔肯雅热本地病例 /a> /h5> p classcard-text>疫情已得到初步遏制/p> /div> div classcard-footer bg-transparent> div classcard-meta> span>i classfar fa-calendar>/i> 2025年08月10日/span> span>i classfas fa-eye>/i> 326/span> /div> /div> /div> /div> /div> div classtext-center mt-4> a hrefhttp://btcredit.com/news.php?categorypublichealth classbtn btn-outline-primary> 更多 公共健康新闻 i classfas fa-arrow-right ms-2>/i> /a> /div> /div> /section> !-- Patient Stories Section -->section classsection bg-secondary> div classcontainer> div classsection-title> h2>i classfas fa-users text-primary me-2>/i>患者故事/h2> p>每一个故事都值得被倾听/p> /div> div classrow g-4> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge badge-category mb-2>肌萎缩侧索硬化/span> h5 classcard-title> a hrefhttp://btcredit.com/story_detail.php?slugfighting-als-1000-days> 与渐冻症抗争的1000天 /a> /h5> p classcard-text>从确诊到现在已经1000天了，虽然身体在退化，但我的心从未放弃希望。/p> /div> div classcard-footer bg-transparent> div classd-flex align-items-center> div classrounded-circle bg-primary text-white d-flex align-items-center justify-content-center me-2 stylewidth: 32px; height: 32px; min-width: 32px; font-size: 14px; > i classfas fa-user>/i> /div> div> small classtext-muted>由 李晓红 分享/small> /div> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge badge-category mb-2>软骨发育不全/span> h5 classcard-title> a hrefhttp://btcredit.com/story_detail.php?slugpku-mom-diary> PKU妈妈的育儿日记 /a> /h5> p classcard-text>作为一个PKU患儿的妈妈，我想分享这三年来的酸甜苦辣。/p> /div> div classcard-footer bg-transparent> div classd-flex align-items-center> div classrounded-circle bg-primary text-white d-flex align-items-center justify-content-center me-2 stylewidth: 32px; height: 32px; min-width: 32px; font-size: 14px; > i classfas fa-user>/i> /div> div> small classtext-muted>由 刘小芳 分享/small> /div> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge badge-category mb-2>肌萎缩侧索硬化/span> h5 classcard-title> a hrefhttp://btcredit.com/story_detail.php?slugsma-choose-smile> 我是SMA患者，但我选择微笑 /a> /h5> p classcard-text>轮椅限制了我的脚步，却限制不了我的梦想。/p> /div> div classcard-footer bg-transparent> div classd-flex align-items-center> div classrounded-circle bg-primary text-white d-flex align-items-center justify-content-center me-2 stylewidth: 32px; height: 32px; min-width: 32px; font-size: 14px; > i classfas fa-user>/i> /div> div> small classtext-muted>由 王医生 分享/small> /div> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge badge-category mb-2>进行性骨化性纤维发育不良/span> h5 classcard-title> a hrefhttp://btcredit.com/story_detail.php?slugoi-strong-life> 瓷娃娃的坚强人生 /a> /h5> p classcard-text>经历了20多次骨折，我依然热爱这个世界。/p> /div> div classcard-footer bg-transparent> div classd-flex align-items-center> div classrounded-circle bg-primary text-white d-flex align-items-center justify-content-center me-2 stylewidth: 32px; height: 32px; min-width: 32px; font-size: 14px; > i classfas fa-user>/i> /div> div> small classtext-muted>由 孙护士 分享/small> /div> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge badge-category mb-2>软骨发育不全/span> h5 classcard-title> a hrefhttp://btcredit.com/story_detail.php?slug%E4%B8%80%E4%B8%AA%E6%AF%8D%E4%BA%B2%E7%9A%84%E6%B1%82%E5%8C%BB%E4%B9%8B%E8%B7%AF-%E7%AC%AC79%E7%AF%87> 一个母亲的求医之路 - 第79篇 /a> /h5> p classcard-text>当孩子被确诊为罕见病时，我的世界仿佛停止了转动。那段时间，我四处求医，查阅资料，希望能找到治愈的方法。 在这个过程中，我遇到了许多同样命运的家庭，大家互相鼓励、分享经验。我也逐渐学.../p> /div> div classcard-footer bg-transparent> div classd-flex align-items-center> div classrounded-circle bg-primary text-white d-flex align-items-center justify-content-center me-2 stylewidth: 32px; height: 32px; min-width: 32px; font-size: 14px; > i classfas fa-user>/i> /div> div> small classtext-muted>由 赵先生 分享/small> /div> /div> /div> /div> /div> div classcol-md-4> div classcard h-100> div classcard-body> span classbadge badge-category mb-2>软骨发育不全/span> h5 classcard-title> a hrefhttp://btcredit.com/story_detail.php?slug%E5%8C%BB%E6%82%A3%E5%90%8C%E5%BF%83-%E5%85%B1%E6%8A%97%E7%BD%95%E8%A7%81%E7%97%85-%E7%AC%AC71%E7%AF%87> 医患同心，共抗罕见病 - 第71篇 /a> /h5> p classcard-text>作为一名医生，我见证了无数罕见病患者和家庭的坚强与勇气。 在这个过程中，我也学到了很多。患者的坚强让我敬佩，家属的无私让我感动。 医学虽然不是万能的，但我们的努.../p> /div> div classcard-footer bg-transparent> div classd-flex align-items-center> div classrounded-circle bg-primary text-white d-flex align-items-center justify-content-center me-2 stylewidth: 32px; height: 32px; min-width: 32px; font-size: 14px; > i classfas fa-user>/i> /div> div> small classtext-muted>由 李晓红 分享/small> /div> /div> /div> /div> /div> /div> div classtext-center mt-4> a hrefhttp://btcredit.com/stories.php classbtn btn-outline-primary me-2> 阅读更多 i classfas fa-arrow-right ms-2>/i> /a> /div> /div>/section>!-- Featured Diseases Section -->section classsection bg-secondary> div classcontainer> div classsection-title> h2>i classfas fa-book-medical text-primary me-2>/i>罕见病百科/h2> p>了解罕见病，是关爱的第一步 span classbadge bg-primary ms-2>总计 89 种/span>/p> /div> div classrow g-4> div classcol-md-6 col-lg-4> div classcard disease-card h-100> div classcard-header> div classd-flex justify-content-between align-items-center> span classbadge-category>内分泌与代谢性疾病/span> /div> /div> div classcard-body> h5 classcard-title> a hrefhttp://btcredit.com/disease_detail.php?slug%E9%81%97%E4%BC%A0%E6%80%A7%E5%85%B1%E6%B5%8E%E5%A4%B1%E8%B0%83> 遗传性共济失调 /a> /h5> p classtext-muted small mb-2>Hereditary Ataxia/p> p classcard-text>概述：一组以慢性进行性共济失调（运动协调障碍）为主要特征的神经退行性疾病，累及小脑、脑干和脊髓。 分类与病因： 常染色体显性遗传 (AD)：统称 SCA (Spinocerebellar Ataxia.../p> /div> div classcard-footer bg-transparent> div classd-flex justify-content-between align-items-center> span classcard-meta> i classfas fa-eye>/i> 257 /span> a hrefhttp://btcredit.com/disease_detail.php?slug%E9%81%97%E4%BC%A0%E6%80%A7%E5%85%B1%E6%B5%8E%E5%A4%B1%E8%B0%83 classbtn btn-sm btn-outline-primary> 了解更多 i classfas fa-arrow-right ms-1>/i> /a> /div> /div> /div> /div> div classcol-md-6 col-lg-4> div classcard disease-card h-100> div classcard-header> div classd-flex justify-content-between align-items-center> span classbadge-category>皮肤疾病/span> span classprevalence-badge>患病率: NF1发病率约1/3,000；NF2约1/25,000-1/33,000。/span> /div> /div> div classcard-body> h5 classcard-title> a hrefhttp://btcredit.com/disease_detail.php?slug%E7%A5%9E%E7%BB%8F%E7%BA%A4%E7%BB%B4%E7%98%A4%E7%97%85> 神经纤维瘤病 /a> /h5> p classtext-muted small mb-2>Neurofibromatosis, NF/p> p classcard-text>概述：一组以神经系统肿瘤生长及皮肤异常为特征的常染色体显性遗传病。 分类： NF1型（96%）：Von Recklinghausen病。NF1基因（17q11.2）突变，编码Neurofibromin.../p> /div> div classcard-footer bg-transparent> div classd-flex justify-content-between align-items-center> span classcard-meta> i classfas fa-eye>/i> 256 /span> a hrefhttp://btcredit.com/disease_detail.php?slug%E7%A5%9E%E7%BB%8F%E7%BA%A4%E7%BB%B4%E7%98%A4%E7%97%85 classbtn btn-sm btn-outline-primary> 了解更多 i classfas fa-arrow-right ms-1>/i> /a> /div> /div> /div> /div> div classcol-md-6 col-lg-4> div classcard disease-card h-100> div classcard-header> div classd-flex justify-content-between align-items-center> span classbadge-category>神经系统疾病/span> span classprevalence-badge>患病率: 年发病率约3-4/10万。多见于老年人（中位64岁）。/span> /div> /div> div classcard-body> h5 classcard-title> a hrefhttp://btcredit.com/disease_detail.php?slug%E8%83%B6%E8%B4%A8%E6%AF%8D%E7%BB%86%E8%83%9E%E7%98%A4> 胶质母细胞瘤 /a> /h5> p classtext-muted small mb-2>Glioblastoma, GBM/p> p classcard-text>概述：成人最常见、恶性程度最高的原发性颅内肿瘤（星形细胞肿瘤）。 病因：多为散发。与电离辐射暴露有关。分子特征为IDH野生型，伴有TERT启动子突变、EGFR扩增、+7/-10染色体改变等。 流行病学.../p> /div> div classcard-footer bg-transparent> div classd-flex justify-content-between align-items-center> span classcard-meta> i classfas fa-eye>/i> 247 /span> a hrefhttp://btcredit.com/disease_detail.php?slug%E8%83%B6%E8%B4%A8%E6%AF%8D%E7%BB%86%E8%83%9E%E7%98%A4 classbtn btn-sm btn-outline-primary> 了解更多 i classfas fa-arrow-right ms-1>/i> /a> /div> /div> /div> /div> div classcol-md-6 col-lg-4> div classcard disease-card h-100> div classcard-header> div classd-flex justify-content-between align-items-center> span classbadge-category>内分泌与代谢性疾病/span> span classprevalence-badge>患病率: 发病率约1-2.5/10万。发病高峰55-75岁。男性稍多。/span> /div> /div> div classcard-body> h5 classcard-title> a hrefhttp://btcredit.com/disease_detail.php?slug%E8%82%8C%E8%90%8E%E7%BC%A9%E4%BE%A7%E7%B4%A2%E7%A1%AC%E5%8C%96> 肌萎缩侧索硬化 /a> /h5> p classtext-muted small mb-2>Amyotrophic Lateral Sclerosis, ALS/p> p classcard-text>概述：一种致命的神经退行性疾病，主要累及大脑皮层、脑干和脊髓的上运动神经元 (UMN) 和 下运动神经元 (LMN)，导致进行性肌无力、萎缩和延髓麻痹。 病因与流行病学： 病因：90%-95%为散发性.../p> /div> div classcard-footer bg-transparent> div classd-flex justify-content-between align-items-center> span classcard-meta> i classfas fa-eye>/i> 239 /span> a hrefhttp://btcredit.com/disease_detail.php?slug%E8%82%8C%E8%90%8E%E7%BC%A9%E4%BE%A7%E7%B4%A2%E7%A1%AC%E5%8C%96 classbtn btn-sm btn-outline-primary> 了解更多 i classfas fa-arrow-right ms-1>/i> /a> /div> /div> /div> /div> div classcol-md-6 col-lg-4> div classcard disease-card h-100> div classcard-header> div classd-flex justify-content-between align-items-center> span classbadge-category>神经系统疾病/span> span classprevalence-badge>患病率: 患病率约1/2,000。通常在10-30岁起病，常被延误诊断多年。/span> /div> /div> div classcard-body> h5 classcard-title> a hrefhttp://btcredit.com/disease_detail.php?slug%E5%8F%91%E4%BD%9C%E6%80%A7%E7%9D%A1%E7%97%85> 发作性睡病 /a> /h5> p classtext-muted small mb-2>Narcolepsy/p> p classcard-text>概述：一种慢性睡眠-觉醒障碍，特征为日间过度嗜睡（EDS）、猝倒、睡眠瘫痪和入睡前幻觉（四联征）。 病因： 1型 (NT1)：下丘脑外侧区分泌素 (Hypocretin/Orexin) 神经元选择性缺.../p> /div> div classcard-footer bg-transparent> div classd-flex justify-content-between align-items-center> span classcard-meta> i classfas fa-eye>/i> 230 /span> a hrefhttp://btcredit.com/disease_detail.php?slug%E5%8F%91%E4%BD%9C%E6%80%A7%E7%9D%A1%E7%97%85 classbtn btn-sm btn-outline-primary> 了解更多 i classfas fa-arrow-right ms-1>/i> /a> /div> /div> /div> /div> div classcol-md-6 col-lg-4> div classcard disease-card h-100> div classcard-header> div classd-flex justify-content-between align-items-center> span classbadge-category>血液与肿瘤系统疾病/span> /div> /div> div classcard-body> h5 classcard-title> a hrefhttp://btcredit.com/disease_detail.php?slug%E9%BB%91%E8%89%B2%E7%B4%A0%E7%98%A4> 黑色素瘤 /a> /h5> p classtext-muted small mb-2>Melanoma/p> p classcard-text>概述：起源于黑色素细胞的高度恶性肿瘤。 亚型（中国特色）： 肢端雀斑样黑色素瘤 (ALM)：占中国患者50%。发生于足底、足趾、手指、甲下。与紫外线无关，可能与外伤/摩擦有关。 黏膜黑色素瘤：占20%.../p> /div> div classcard-footer bg-transparent> div classd-flex justify-content-between align-items-center> span classcard-meta> i classfas fa-eye>/i> 219 /span> a hrefhttp://btcredit.com/disease_detail.php?slug%E9%BB%91%E8%89%B2%E7%B4%A0%E7%98%A4 classbtn btn-sm btn-outline-primary> 了解更多 i classfas fa-arrow-right ms-1>/i> /a> /div> /div> /div> /div> /div> div classtext-center mt-4> a hrefhttp://btcredit.com/diseases.php classbtn btn-primary> 查看全部 i classfas fa-arrow-right ms-2>/i> /a> /div> /div>/section>!-- Rare Disease Navigation Section -->section classsection bg-secondary> div classcontainer> div classsection-title> h2>i classfas fa-globe text-primary me-2>/i>罕见病导航/h2> p>汇集国内外权威罕见病组织与信息平台/p> /div> !-- Simple Category Tabs --> div classd-flex justify-content-center flex-wrap gap-2 mb-4 roletablist idlinkCategoryTabs> button classbtn btn-primary 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pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page4> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttps://www.geneticalliance.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-atom fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Genetic Alliance/h6> p classcard-text small text-muted mb-0> 遗传疾病联盟 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://everylifefoundation.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-heartbeat fa-3x text-primary>/i> /div> h6 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pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.wchscu.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hospital fa-3x text-primary>/i> /div> h6 classcard-title mb-2>四川大学华西医院/h6> p classcard-text small text-muted mb-0> 综合罕见病诊疗 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.gzsums.net/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hospital-alt fa-3x text-primary>/i> /div> h6 classcard-title mb-2>中山大学附属第一医院/h6> p classcard-text small text-muted mb-0> 遗传代谢病诊治 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.mayoclinic.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hospital-symbol fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Mayo Clinic/h6> p classcard-text small text-muted mb-0> 美国梅奥诊所 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://my.clevelandclinic.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hospital fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Cleveland Clinic/h6> p classcard-text small text-muted mb-0> 美国克利夫兰诊所 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page3> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttps://www.hopkinsmedicine.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hospital-user fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Johns Hopkins Medicine/h6> p classcard-text small text-muted mb-0> 约翰霍普金斯医学院 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.childrenshospital.org/ target_blank relnoopener noreferrer classcard h-100 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small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://ec.europa.eu/health/ern_en target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-network-wired fa-3x text-primary>/i> /div> h6 classcard-title mb-2>European Reference Networks/h6> p classcard-text small text-muted mb-0> 欧洲罕见病参考网络 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page4> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttps://clinicaltrials.gov/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-pills fa-3x text-primary>/i> 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ease;> div classcard-body text-center> div classmb-3> i classfas fa-vial fa-3x text-primary>/i> /div> h6 classcard-title mb-2>中国临床试验注册中心/h6> p classcard-text small text-muted mb-0> 中国临床试验注册平台 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.genomics.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>华大基因/h6> p classcard-text small text-muted mb-0> 基因检测与遗传咨询 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.berrygenomics.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>贝瑞基因/h6> p classcard-text small text-muted mb-0> 遗传病基因检测 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.novogene.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>诺禾致源/h6> p classcard-text small text-muted mb-0> 基因组学研究服务 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page5> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttp://www.annoroad.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>安诺优达/h6> p classcard-text small text-muted mb-0> 基因检测技术服务 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.kingmed.com.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-vial fa-3x text-primary>/i> /div> h6 classcard-title mb-2>金域医学/h6> p classcard-text small text-muted mb-0> 第三方医学检验 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.illumina.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Illumina/h6> p classcard-text small text-muted mb-0> 基因测序技术领导者 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.23andme.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>23andMe/h6> p classcard-text small text-muted mb-0> 个人基因检测服务 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.genedx.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>GeneDx/h6> p classcard-text small text-muted mb-0> 临床基因诊断 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.invitae.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-dna fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Invitae/h6> p classcard-text small text-muted mb-0> 医学遗传学检测 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page6> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttps://www.fda.gov/industry/orphan-products-development target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-prescription-bottle fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Orphan Drug Designations/h6> p classcard-text small text-muted mb-0> FDA孤儿药认定 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.ema.europa.eu/en/human-regulatory/overview/orphan-designation-overview target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-pills fa-3x text-primary>/i> /div> h6 classcard-title mb-2>EMA Orphan Medicines/h6> p classcard-text small text-muted mb-0> EMA孤儿药评估 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://pharmaintelligence.informa.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-capsules fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Pharma Intelligence/h6> p classcard-text small text-muted mb-0> 医药情报与分析 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.raredr.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-file-medical fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Rare Disease Report/h6> p classcard-text small text-muted mb-0> 罕见病药物研发动态 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.biomarin.com/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-prescription fa-3x text-primary>/i> /div> h6 classcard-title mb-2>BioMarin Pharmaceutical/h6> p classcard-text small text-muted mb-0> 罕见病药物研发企业 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> !-- Pagination Controls --> nav classmt-4 aria-label链接分页> ul classpagination justify-content-center mb-0 data-categorymedical stylegap: 8px;> li classpage-item disabled data-navprev> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# tabindex-1 stylewidth: 40px; height: 40px; padding: 0; border: 2px solid #dee2e6;> i classfas fa-chevron-left>/i> /a> /li> li classpage-item active data-page1> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid var(--primary); background: var(--primary); color: white;> 1 /a> /li> li classpage-item data-page2> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 2 /a> /li> li classpage-item data-page3> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 3 /a> /li> li classpage-item data-page4> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 4 /a> /li> li classpage-item data-page5> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 5 /a> /li> li classpage-item data-page6> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 6 /a> /li> li classpage-item data-navnext> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; border: 2px solid #dee2e6;> i classfas fa-chevron-right>/i> /a> /li> /ul> /nav> /div> div classtab-pane fade idcontent-government roletabpanel> !-- Links Grid with Pagination --> div classlink-page data-page1> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttp://www.nhc.gov.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-landmark fa-3x text-primary>/i> /div> h6 classcard-title mb-2>国家卫生健康委员会/h6> p classcard-text small text-muted mb-0> 国家卫健委官网 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.nmpa.gov.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i 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ease;> div classcard-body text-center> div classmb-3> i classfas fa-shield-virus fa-3x text-primary>/i> /div> h6 classcard-title mb-2>中国疾病预防控制中心/h6> p classcard-text small text-muted mb-0> 中国CDC官网 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.nrdrs.org.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-database fa-3x text-primary>/i> /div> h6 classcard-title mb-2>国家卫健委罕见病诊疗登记系统/h6> p classcard-text small text-muted mb-0> 罕见病登记平台 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.cdpf.org.cn/ target_blank relnoopener noreferrer classcard 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fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.fda.gov/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-flag-usa fa-3x text-primary>/i> /div> h6 classcard-title mb-2>FDA(美国)/h6> p classcard-text small text-muted mb-0> 美国食品药品监督管理局 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.ema.europa.eu/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-flag fa-3x text-primary>/i> /div> h6 classcard-title mb-2>EMA(欧洲)/h6> p classcard-text small text-muted mb-0> 欧洲药品管理局 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.who.int/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-globe fa-3x text-primary>/i> /div> h6 classcard-title mb-2>WHO Rare Diseases/h6> p classcard-text small text-muted mb-0> 世界卫生组织 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.gov.uk/government/organisations/medicines-and-healthcare-products-regulatory-agency target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-landmark fa-3x text-primary>/i> /div> h6 classcard-title mb-2>MHRA(英国)/h6> p classcard-text small text-muted mb-0> 英国药品和医疗产品管理局 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.canada.ca/en/health-canada.html target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-flag fa-3x text-primary>/i> /div> h6 classcard-title mb-2>Health Canada/h6> p classcard-text small text-muted mb-0> 加拿大卫生部 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page3> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttps://www.tga.gov.au/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-flag fa-3x text-primary>/i> /div> h6 classcard-title mb-2>TGA(澳大利亚)/h6> p classcard-text small text-muted mb-0> 澳大利亚药品管理局 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.pmda.go.jp/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-flag fa-3x text-primary>/i> /div> h6 classcard-title mb-2>PMDA(日本)/h6> p classcard-text small text-muted mb-0> 日本药品医疗器械综合机构 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://ec.europa.eu/health/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-landmark fa-3x text-primary>/i> /div> h6 classcard-title mb-2>European Commission Health/h6> p classcard-text small text-muted mb-0> 欧盟委员会卫生部门 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> !-- Pagination Controls --> nav classmt-4 aria-label链接分页> ul classpagination justify-content-center mb-0 data-categorygovernment stylegap: 8px;> li classpage-item disabled data-navprev> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# tabindex-1 stylewidth: 40px; height: 40px; padding: 0; border: 2px solid #dee2e6;> i classfas fa-chevron-left>/i> /a> /li> li classpage-item active data-page1> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid var(--primary); background: var(--primary); color: white;> 1 /a> /li> li classpage-item data-page2> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 2 /a> /li> li classpage-item data-page3> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid #dee2e6; > 3 /a> /li> li classpage-item data-navnext> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; border: 2px solid #dee2e6;> i classfas fa-chevron-right>/i> /a> /li> /ul> /nav> /div> div classtab-pane fade idcontent-community roletabpanel> !-- Links Grid with Pagination --> div classlink-page data-page1> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttp://www.xueyou.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-tint fa-3x text-primary>/i> /div> h6 classcard-title mb-2>血友病之家/h6> p classcard-text small text-muted mb-0> 血友病患者互助平台 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.pkujiayuan.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-home fa-3x text-primary>/i> /div> h6 classcard-title mb-2>PKU家园/h6> p classcard-text small text-muted mb-0> 苯丙酮尿症患者平台 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.als-home.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-wheelchair fa-3x text-primary>/i> /div> h6 classcard-title mb-2>渐冻人之家/h6> p classcard-text small text-muted mb-0> ALS渐冻人关爱 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.albinism.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-eye fa-3x text-primary>/i> /div> h6 classcard-title mb-2>中国白化病家园/h6> p classcard-text small text-muted mb-0> 白化病患者互助 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.gauchercare.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-ribbon fa-3x text-primary>/i> /div> h6 classcard-title mb-2>戈谢病关爱中心/h6> p classcard-text small text-muted mb-0> 戈谢病患者平台 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.fabrycare.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-heartbeat fa-3x text-primary>/i> /div> h6 classcard-title mb-2>法布雷之家/h6> p classcard-text small text-muted mb-0> 法布雷病患者互助 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page2> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttp://bbs.raredisease.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-comments fa-3x text-primary>/i> /div> h6 classcard-title mb-2>罕见病病友社区/h6> p classcard-text small text-muted mb-0> 罕见病患者交流 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.rdfamily.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-user-friends fa-3x text-primary>/i> /div> h6 classcard-title mb-2>罕见病家长互助会/h6> p classcard-text small text-muted mb-0> 罕见病患儿家长互助 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.pompecare.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hand-holding-heart fa-3x text-primary>/i> /div> h6 classcard-title mb-2>庞贝氏罕见病关爱中心/h6> p classcard-text small text-muted mb-0> 庞贝氏症关爱 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.marfan.org.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: 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/div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.pso.org.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hand-holding-medical fa-3x text-primary>/i> /div> h6 classcard-title mb-2>银屑病病友互助网/h6> p classcard-text small text-muted mb-0> 银屑病患者互助 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://service.crd-union.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-hands-helping fa-3x text-primary>/i> /div> h6 classcard-title mb-2>罕见病联盟患者服务平台/h6> p classcard-text small text-muted mb-0> 综合患者服务 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.sca-china.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-brain fa-3x text-primary>/i> /div> h6 classcard-title mb-2>脊髓小脑性共济失调关爱联盟/h6> p classcard-text small text-muted mb-0> SCA患者互助 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.tsc-china.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-brain fa-3x text-primary>/i> /div> h6 classcard-title mb-2>结节性硬化症患者组织/h6> p classcard-text small text-muted mb-0> TSC患者关爱 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.ccfa.org.cn/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-stomach fa-3x text-primary>/i> /div> h6 classcard-title mb-2>克罗恩病患者社区/h6> p classcard-text small text-muted mb-0> 炎症性肠病患者 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> div classlink-page d-none data-page4> div classrow g-4> div classcol-sm-6 col-md-4> a hrefhttp://www.ms-china.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-brain fa-3x text-primary>/i> /div> h6 classcard-title mb-2>多发性硬化患者组织/h6> p classcard-text small text-muted mb-0> MS患者互助 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttp://www.lupus-china.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div classcard-body text-center> div classmb-3> i classfas fa-ribbon fa-3x text-primary>/i> /div> h6 classcard-title mb-2>系统性红斑狼疮社区/h6> p classcard-text small text-muted mb-0> SLE患者交流 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> div classcol-sm-6 col-md-4> a hrefhttps://www.rareconnect.org/ target_blank relnoopener noreferrer classcard h-100 text-decoration-none hover-shadow styletransition: all 0.3s ease;> div 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text-primary>/i> /div> h6 classcard-title mb-2>Facebook Rare Disease Groups/h6> p classcard-text small text-muted mb-0> Facebook罕见病群组 /p> /div> div classcard-footer bg-transparent border-0 text-center pb-3> small classtext-primary>访问网站 i classfas fa-external-link-alt ms-1>/i>/small> /div> /a> /div> /div> /div> !-- Pagination Controls --> nav classmt-4 aria-label链接分页> ul classpagination justify-content-center mb-0 data-categorycommunity stylegap: 8px;> li classpage-item disabled data-navprev> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# tabindex-1 stylewidth: 40px; height: 40px; padding: 0; border: 2px solid #dee2e6;> i classfas fa-chevron-left>/i> /a> /li> li classpage-item active data-page1> a classpage-link rounded-circle d-flex align-items-center justify-content-center href# stylewidth: 40px; height: 40px; padding: 0; font-weight: 500; border: 2px solid var(--primary); background: var(--primary); color: white;> 1 /a> /li> li classpage-item 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classcol-lg-8> div classcta-content> h2 classmb-3> 公益招募 /h2> p classlead mb-0> 我们诚恳邀请您参与我们的罕见病公益项目，以帮助那些需要支持的患者及其家庭。如果您有时间，我们欢迎您加入我们的团队；如果您能提供经济支持，我们将不胜感激。无论您选择捐款还是奉献时间，您所做的每一份贡献对我们的事业都是至关重要的。让我们携手合作，为罕见病患者带来希望和更美好的未来！ /p> /div> /div> div classcol-lg-4 text-center text-lg-end> div classcta-buttons> a hrefhttps://rdforum.chinaicf.org/ classbtn btn-primary btn-lg mb-2 target_blank> i classfas fa-globe me-2>/i>罕见病合作交流会网站 /a> a hrefmailto:bttz@chinaicf.org classbtn btn-outline-light btn-lg> i classfas fa-envelope me-2>/i>bttz@chinaicf.org /a> /div> /div> /div> /div> /div>/section> /main> !-- End Main Content --> !-- Footer --> footer classfooter> div classcontainer> div classrow> !-- Brand Column --> div classcol-lg-4 col-md-6 footer-col> a hrefhttp://btcredit.com/ classfooter-brand> i classfas fa-heart-pulse me-2>/i>Btcredit /a> p classfooter-desc> 关注罕见病，传递希望与爱。我们致力于提高公众对罕见病的认识， 为患者提供信息支持、社区交流和援助对接服务。 /p> div classfooter-social> a href# aria-label微信 data-bs-toggletooltip title微信 onmouseovershowWechatQR(this) onclickevent.preventDefault(); showWechatQR(this)> i classfab fa-weixin styleposition: relative;>/i> /a> a hrefmailto:hello@btcredit.com aria-label邮箱> i classfas fa-envelope>/i> /a> /div> /div> !-- Quick Links --> div classcol-lg-2 col-md-6 footer-col> h5 classfooter-title>快速链接/h5> ul classfooter-links> li>a hrefhttp://btcredit.com/>首页/a>/li> li>a hrefhttp://btcredit.com/diseases.php>罕见病百科/a>/li> li>a hrefhttp://btcredit.com/news.php>新闻资讯/a>/li> li>a hrefhttp://btcredit.com/stories.php>患者故事/a>/li> li>a hrefhttp://btcredit.com/donate.php>我要捐助/a>/li> /ul> /div> !-- Resources --> div classcol-lg-2 col-md-6 footer-col> h5 classfooter-title>资源中心/h5> ul classfooter-links> li>a hrefhttp://btcredit.com/events.php>公益活动/a>/li> li>a hrefhttp://btcredit.com/about.php>关于我们/a>/li> li>a hrefhttp://btcredit.com/volunteer.php>志愿者招募/a>/li> li>a hrefhttp://btcredit.com/contact.php>联系我们/a>/li> li>a hrefhttp://btcredit.com/faq.php>常见问题/a>/li> /ul> /div> !-- Contact Info --> div classcol-lg-4 col-md-6 footer-col> h5 classfooter-title>联系我们/h5> ul classfooter-links> li> i classfas fa-envelope me-2 text-primary>/i> a hrefmailto:hello@btcredit.com classtext-decoration-none>hello@btcredit.com/a> /li> /ul> !-- Newsletter --> form classmt-3 idnewsletter-form> input typehidden namecsrf_token valuef73db7152a2153ac2fef78443b6e3f687c164c1890fdc56f5b72fb6ae4a690dd> div classinput-group> input typeemail classform-control nameemail placeholder订阅我们的新闻 required> button classbtn btn-primary typesubmit> i classfas fa-paper-plane>/i> /button> /div> div idnewsletter-feedback classmt-2 styledisplay: none;>/div> /form> /div> /div> !-- Bottom Bar --> div classfooter-bottom> div classrow align-items-center> div classcol-md-6 text-md-start text-center mb-2 mb-md-0> p classmb-0> © 2026 Btcredit. All rights reserved. br classd-md-none> /p> /div> div classcol-md-6 text-md-end text-center> a hrefhttp://btcredit.com/privacy.php classtext-muted me-3>隐私政策/a> a hrefhttp://btcredit.com/terms.php classtext-muted me-3>使用条款/a> a hrefhttp://btcredit.com/sitemap.php classtext-muted>网站地图/a> /div> /div> /div> /div> /footer> !-- Bootstrap 5 JS Bundle --> script srchttps://cdn.jsdelivr.net/npm/bootstrap@5.3.2/dist/js/bootstrap.bundle.min.js>/script> !-- Custom Scripts --> script srchttp://btcredit.com/assets/js/main.js>/script> script srchttp://btcredit.com/assets/js/ajax-core.js>/script> script> // Function to show WeChat QR code function showWechatQR(element) { // Remove any existing QR code tooltips const existingQR document.querySelector(.wechat-qr-tooltip); if (existingQR) { existingQR.remove(); } // Create QR code tooltip const qrDiv document.createElement(div); qrDiv.className wechat-qr-tooltip; qrDiv.style.cssText ` position: absolute; background: white; border: 2px solid #ddd; border-radius: 8px; padding: 10px; box-shadow: 0 4px 12px rgba(0,0,0,0.15); z-index: 1000; display: block; left: 0; top: 0; `; const img document.createElement(img); img.src http://btcredit.com/assets/images/wechat.jpg; img.alt 微信二维码; img.onerror function() { // If image doesnt exist, show a placeholder this.src data:image/svg+xml;utf8,svg xmlnshttp://www.w3.org/2000/svg width120 height120 viewBox0 0 120 120>rect width120 height120 fill#f8f9fa/>text x60 y60 font-familyArial font-size12 fill#6c757d text-anchormiddle dominant-baselinemiddle>微信二维码/text>/svg>; }; img.style.cssText width: 120px; height: 120px; display: block;; qrDiv.appendChild(img); // Append to body first document.body.appendChild(qrDiv); // Position the tooltip near the icon after its added to DOM const rect element.getBoundingClientRect(); const scrollTop window.pageYOffset || document.documentElement.scrollTop; const scrollLeft window.pageXOffset || document.documentElement.scrollLeft; // Calculate position relative to the icon const top rect.top + scrollTop - qrDiv.offsetHeight - 10; const left rect.left + scrollLeft + (rect.width / 2) - (qrDiv.offsetWidth / 2); qrDiv.style.top top + px; qrDiv.style.left left + px; // Add event to hide tooltip when moving away const hideQR function() { if (qrDiv.parentNode) { qrDiv.remove(); } }; // Hide after a delay setTimeout(hideQR, 3000); // Also hide on mouse leave element.addEventListener(mouseleave, hideQR, { once: true }); } /script> script> // AJAX Newsletter Subscription document.addEventListener(DOMContentLoaded, function() { const newsletterForm document.getElementById(newsletter-form); if (newsletterForm) { newsletterForm.addEventListener(submit, function(e) { e.preventDefault(); const emailInput newsletterForm.querySelector(inputnameemail); const submitBtn newsletterForm.querySelector(buttontypesubmit); const feedbackDiv document.getElementById(newsletter-feedback); const email emailInput.value.trim(); if (!email) { feedbackDiv.innerHTML div classalert alert-warning mb-0>请输入邮箱地址/div>; feedbackDiv.style.display block; return; } if (!isValidEmail(email)) { feedbackDiv.innerHTML div classalert alert-warning mb-0>邮箱格式不正确/div>; feedbackDiv.style.display block; return; } function isValidEmail(email) { const re /^a-zA-Z0-9._%+-+@a-zA-Z0-9.-+\.a-zA-Z{2,}$/; return re.test(email); } // Disable button and show loading submitBtn.disabled true; submitBtn.innerHTML i classfas fa-spinner fa-spin>/i> 提交中...; // Get CSRF token const csrfToken newsletterForm.querySelector(inputnamecsrf_token).value; // Send AJAX request fetch(http://btcredit.com/ajax_subscribe.php, { method: POST, headers: { Content-Type: application/x-www-form-urlencoded, }, body: email + encodeURIComponent(email) + &csrf_token + encodeURIComponent(csrfToken) }) .then(response > response.json()) .then(data > { if (data.success) { feedbackDiv.innerHTML div classalert alert-success mb-0> + data.message + /div>; emailInput.value ; // Clear the email field } else { feedbackDiv.innerHTML div classalert alert-danger mb-0> + data.message + /div>; } feedbackDiv.style.display block; }) .catch(error > { feedbackDiv.innerHTML div classalert alert-danger mb-0>网络错误，请稍后重试/div>; feedbackDiv.style.display block; }) .finally(() > { // Re-enable button and reset text submitBtn.disabled false; submitBtn.innerHTML i classfas fa-paper-plane>/i>; }); }); } }); /script> /body>/html>
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