Domain > therddr.org

More information on this domain is in AlienVault OTX

DNS Resolutions

Date	IP Address
2024-09-27	3.16.248.55 (ClassC)
2026-02-25	3.129.124.95 (ClassC)

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!DOCTYPE html>HTML langen>HEAD>TITLE>RDDR - Rare Disease Data Repository/TITLE>meta charsetutf-8>META namegooglebot contentindex, archive, follow, snippet>meta namegoogle-site-verification content9GLK8jWe8Q8rvDxAXGavMH0md93sLRl43f_2c5LZk58 />LINK relcanonical hrefhttps://www.therddr.org>link relapple-touch-icon sizes180x180 hreffavicon/apple-touch-icon.png>link relicon typeimage/png sizes32x32 hreffavicon/favicon-32x32.png>link relshortcut icon hreffavicon/favicon.ico>link relmanifest hreffavicon/sitemanifest.json>META namerobots contentindex, archive, follow>META namekeywords contentrare disease, data, data repository>META namedescription contentThe Rare Disease Data Repository.>META nameapple-mobile-web-app-capable contentyes>META NAMEHandheldFriendly contentTrue>meta nameviewport contentwidthdevice-width, initial-scale1.0>LINK relstylesheet hrefcss/clirinx.css mediaall>SCRIPT src./jscriptv2/sorttable.js>/SCRIPT>SCRIPT src./jscriptv2/functions.js>/SCRIPT>SCRIPT src./jscriptv2/functions_v3.js>/SCRIPT>SCRIPT src./jscriptv2/plupload.js>/SCRIPT>SCRIPT src./jscriptv2/datetimepicker_css.js>/SCRIPT>SCRIPT src./jscriptv2/jquery-3.7.1.min.js>/SCRIPT>LINK relstylesheet href./jscriptv2/jquery-ui-1.13.3.ui_darkness/jquery-ui.css>SCRIPT src./jscriptv2/jquery-ui-1.13.3.start/jquery-ui.min.js>/SCRIPT>SCRIPT>// if ( window.location.href.indexOf(www)  0 && window.location.href.indexOf(localhost)  0)// {//     window.location.href  https://www.clirinx.com;// }if ( (window.location.protocol ! https: || window.location.protocol  ) && window.location.href.indexOf(localhost)  0){    window.location.replace(`https:${location.href.substring(location.protocol.length)}`);}/SCRIPT>script typeapplication/ld+json>{@context : http://schema.org,@type : Organization,name : The RDDR,alternateName : The RDDR,logo: https://therddr.org/images/logo.png,url : https://therddr.org,sameAs :  https://twitter.com/_therddr }/script>script defer data-domaintherddr.org srchttps://plausible.io/js/script.js>/script>/HEAD>BODY>img classbanner-big srcimages/raredata_banner_full.png>img classbanner-small srcimages/raredata_banner_small.png>DIV classtopnav idmyTopnav>    a hrefindex.php classactive menu-first>Home/a>    a hrefcatalog.php class>Catalog/a>    a hrefservices.php class>Services/a>    a hrefnews.php class>News/a>    a hrefabout.php class>About/a>    a hrefcontact.php class>Contact/a>a stylefloat:right hreflogin.php class>LOGIN/a>a hrefjavascript:void(0); stylefont-size:29px;padding:8px; classicon menu-last onclickmyFunction()>☰/a>    /div>BR>DIV styledisplay:block;>DIV classcol-left>IMG classlogo stylecursor:pointer; srcimages/rare_logo.png onclicklocation.hrefindex.php titleHome page altHome page>/DIV>DIV classcol-content>BR>H1 classheader fadeInUp-animation>Rare Disease Data Repository/H1>P>IMG height132 stylefloat:left;margin-right:6px; srcimages/gerry148x185.jpg altGerry Nesbitt, CEO titleGerry Nesbitt, CEO>H3 style>Are you a rare disease organization or researcher with valuable research study datasets or protocols to share? Let us help you to store, organize, and share your rare disease data, unlocking a world of possibilities for research and collaboration!/H3>The Rare Disease Data Repository (RDDR) is an invaluable resource dedicated to the storage, organization, and dissemination of research data pertaining to rare diseases. Catering to researchers and rare disease organizations, the RDDR offers access to rare disease datasets that include natural history studies, clinical trial readiness studies, study findings, protocol documents, etc. Our goal is to accelerate the discovery of new treatments and enhance the understanding of rare diseases by providing a centralized platform for data sharing and collaboration. The RDDR is committed to maintaining the highest standards of data accuracy, privacy, and security, ensuring that all information is managed with the utmost care and integrity. By fostering a collaborative environment, we aim to empower the global rare disease community and drive advancements in diagnosis, treatment, and ultimately, cures.BR>BR>If you are a rare disease organization or academic researcher, please click A hrefrequestaccount.php>HERE/A> to request an account. Once youre registered on RDDR, you may upload your research datasets or request access to datasets from research studies.BR>BR>DIV styletext-align:center;>BUTTON idbut_login typebutton classbutton button_normal button_blue onclickwindow.location.hreflogin.php?u titleLogin>Login/BUTTON>   or   BUTTON idbut_request typebutton classbutton button_normal button_green onclickwindow.location.hrefrequestaccount.php titleRequest Account>Request New Account/BUTTON>/DIV>BR>div classrow>    div classcolumn stylebackground-color:#1f2428;color:white;>        h2>IT for Rare Disease Research/h2>        p>IMG classcol-image srcimages/zebra.png>CLIRINX is dedicated to advancing epilepsy and rare disease research through improved IT tools. Whether youre a researcher, advocate, or seeking resources, were here to enhance IT in rare disease research. /p>    /div>    div classcolumn stylebackground-color:#1cc9f4;color:white;>        h2>Data Repository/h2>        p>IMG classcol-image srcimages/research.png>The Rare Disease Data Repository (RDDR) is a centralized platform dedicated to the storage, organization, and dissemination of comprehensive data on rare diseases to accelerate research. Research data is supplied by IRB-approved research studies./p>    /div>    div classcolumn stylebackground-color:#8e9aa4;color:#ffffff;>        h2>Team Science/h2>        p>IMG classcol-image srcimages/team.png>The RDDR provides a platform for rare disease organizations and academic researchers to upload their de-identified research data securely so that it may be shared with approved researchers. We are dedicated to internet-based research, team science, and disease advocacy./p>    /div>/div>DIV stylebox-sizing: border-box;width:100%;display:block;margin-top:30px;background-color:#8e9aa4;color:white;>DIV classshowcase>h2>Protecting your data/h2>p>IMG styleheight:164px;float:right; srcimages/protect.png altBioinformatics>Security measures include SSL (encryption), encryption of data at rest, unique user names and passwords, single sign-on (Okta), role based access, digital signatures, full audit log and data change history, version controlled CRFs and study documents, restricted/encrypted PHI fields, two-factor authentication, multi-Blockchain document timestamps, IP/geolocation restrictions, OS level security, servers only accessible behind firewall or SSH with private key encryption. We also have Cyber and PI Insurance to protect our business and our customers. All these security and privacy features will help to support your HIPAA and 21CFR11 compliance efforts.BR>BR>You own the data you collect. And, unlike some other software providers, CLIRINX will never analyze, share or sell the data you collect using the CLIRINX software.  /p>/DIV>/DIV>/DIV>DIV classcol-right stylebackground-color:gainsboro;>H2>Recent News/H2>P>STRONG>Jul 1, 2024/STRONG> The RDDR is now live. SMALL>A hrefhttps://therddr.org target_blank>https://theRDDR.org/A>/SMALL>/P>P>STRONG>Apr 24, 2024/STRONG> CLIRINX launches RDDR/P>/DIV>/DIV>P classfooter>SPAN>© CLIRINX 2020 - 2026/SPAN> | SPAN stylecursor:pointer; onclicklocation.hrefterms.php;>Terms/SPAN> | SPAN  stylecursor:pointer; onclicklocation.hrefprivacy.php;>Privacy & GDPR/SPAN>BR>BR>SMALL>SPAN stylecursor:pointer titleVisit www.clirinx.com onclickwindow.open(https://clirinx.com)>Powered by CLIRINX/SPAN>BR>Innovation by Gerry Nesbitt/SMALL>/P>script> function myFunction() { var x  document.getElementById(myTopnav); if (x.className  topnav) { x.className +  responsive; } else { x.className  topnav; }  }  /script>/BODY>/HTML>

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